Genetics Appointment

Max had his bi-annual Genetics appointment this week. I find this hard to believe, but the Genetics Dr is probably my favorite specialist to see. Not just the fact that Max's Dr is great (he is very caring and takes a lot of time with us), but it is the feeling I have when I leave the appointment that puts Genetics at the top of my specialist list. I always leave the appointment with a feeling of "things are going to be OK." The Genetics dr makes sure we have our ducks in a row with doctors/therapist we should be seeing. He takes the initiative to contact doctors that he thinks Max could benefit from seeing. Each time we see him the list gets shorter. He comments on how well we are doing with Max and how we have a great team working with him. This is great for a mom to hear that never thinks she is doing enough. And most importantly, how great Max is doing!! He made the following suggestions at this appointment: Getting Max to the dentist (which he recommended us doing last time we saw him, but I have been putting off), increase the amount of Speech Therapy Max is receiving (I recently have increased ST from once a month to once a week. This was also suggested by a couple other doctors we have recently seen, so I have been working on this. He wants the ST using the Total Communication approach), and he is going to follow-up with urology to see if they want to repeat an ultrasound of his kidneys. Last year when Max had an ultrasound they found a small amount of fluid around his kidneys. He asked if we would be willing to come back in six months and I quickly agreed!!